Sleep Well, Sleep Tight, Don’t Let The Bed Bugs Bite


This gallery contains 13 photos.

Happy New Year! We were away in Australia in December for a family holiday. We had the best vacation ever as a family and the girls were very happy to see their Aussie family and friends there again. Coming back, … Continue reading

>Post Endoscopy & Colonoscopy…….


Yasmin got through the endoscopy and colonoscopy safely. Our thanks for all the well-wishes from many good friends, it gave us strength. Though she was admitted on a Thursday, the scope was scheduled on Friday. When it was time, I carried Yasmin down to the OR, dressed in her little surgical gown. The anesthetist placed the gas mask over her face, she struggled a little but quickly succumbed. Paul and I waited outside for a while and later the doctor invited us in to take a look at the monitor. It was hard to tear my eyes away from Yasmin lying unconscious on the table, meanwhile the doctor showed us several parts of her large intestine.

He did not use a pill-cam even though we requested for it. According to other pediatric GI specialists in the UK and USA, they commonly use pill-cams for young patients even 3 year olds. However, I guess things are different here in Malaysia. Due to the traditional cam scope, the doctor is not able to check the small intestines. However, he did a thorough check on the entrance into the small intestines. The endoscopy was then over, and it was time for the colonoscopy. We then waited outside again, and were invited back into the OR once the doctor had gone into the colon. He showed us her colon and as before, he kindly explained where and what we were seeing and findings he had.

Overall, the up close and personal look at Yasmin’s inside was a revelation. She was absolutely perfect! Everything was pink and healthy as it should be. There were no signs of inflammation, lesions, polyps or anything else out of the ordinary. Paul and I are immensely relieved that she did not have any of the GI diseases we initially suspected. It was good to know that she is not in the kind of awful pain that was reported in many children in GI literature.

Once the procedure was over, I carried Yasmin to the recovery room. Once her condition was deemed stable, we brought her up to her room. It took a long time for her to wake up from the general anesthesia, nearly 2 hours. Even then, we tried several methods to wake her up. We were warned that some patients when coming out of GA tend to act aggressively, cry or act weird. We were prepared for that, but Yasmin was totally fine apart from being groggy, sleepy and a bit uncoordinated, as was expected. The doctor discharged us soon after and Yasmin was happy to be home though tired. We were relieved to be home on Friday night, I was not looking forward to another night in hospital. Caring for a child in hospital is hard enough, even though it was only for 2 days. However, this was during Ramadhan, it was harder to go through it physically, mentally and emotionally while fasting. In the next few days, we expected to see signs of side effect from the anesthesia. However, again we were lucky there wasn’t any lingering side-effects or other concerns.  

The only thing abnormal was that she had constipation and night awakenings for 3 weeks after that. Initially we thought the constipation was due to the scope and it was taking some time for her bowels to get back to normal. However, take note that she had constipation and night awakenings 3 weeks prior to the scope anyway. We had done a stool test for yeast a few weeks before with our pediatrician, it turned out positive. However, we did not address it as we wanted to wait for the scope first in case it affected the outcome of the scope. Because she had recently undergone the procedure, we were advised to take it slow and give her body time to adjust. However, when she was constipated for 3 consecutive days, we gave her Lactulose, a stool softener/laxative. After that, we increased her fluid intake, fibre, vitamin C, magnesium and probiotics. However, it didn’t work. At times we had to use the laxative, to me constipation more than 3 days running needs to be addressed immediately.

I put her on therapeutic doses of S.Boulardii and ThreeLac as anti fungal treatment however there were no changes or improvements. On the advice of our biomed doctor, Yasmin is now on Nystatin and extra Bifido strains of probiotics on top of her usual supplements. Those with constipation may require additional Bifidos temporarily, this worked for both my girls sometimes. Within 2 days, her constipation is reduced, she has a bowel movement every 2 days. Previously she required laxatives. Hopefully, the further we get along with the anti fungal treatment, she will be back to her normal daily bowel movements. And best of all, she now sleeps through the night. Yasmin has slept through the night consistently for the past 1 year unless during times of illness or infections. No more broken sleep for the whole household.      

So, now that our suspicions of colitis has been ruled out, where does that leave us? First and foremost, this is good news indeed. Colitis or any kind of Inflammatory Bowel Disease is terrible in anyone, especially a 3 year old child. Having hard physical evidence that ruled this out is worth it. We are glad that we went through with it, even with all the trauma and possible side effects of the general anesthesia, it was worth the risk. Since the scope has ruled out colitis, IBD (Inflammatory Bowel Disease) and other bowel diseases, the GI specialist based on the symptoms diagnosed Yasmin with IBS (Irritable Bowel Syndrome) instead. IBS is diagnosed based on clinical observations and symptoms, there is no test for it. As usual, I take everything with a pinch of salt. I have read that many Irritable Bowel symptoms are similar to symptoms associated to Clostridium infection. I will look further into this as well as any viral infections, Yasmin regressed ever since the Rotavirus infection, so it makes sense to look into her immune system as well as viruses.

So, how do we treat Yasmin’s issues now? We are maintaining her usual supplements of vitamin C, B complex, minerals, probiotics and cod liver oil. I want to address her immune dysregulation as this is the core reason why she gets recurrent infections. Since we started 4Life Transfer Factor 1 month ago, neither girls have fallen ill. We also give her Klaire Labs Galactomune, a prebiotic formula containing betaglucan  to support TH1 immunity. We also supplement with Vitamin D3, also beneficial to the immune function.

Apart from immune modulating supplements, I also give her Culturelle daily for maintenance against clostridia. I also include Milk Thistle to maintain healthy liver and kidney function. I reintroduced L-Glutamine a couple of months back, this helps with leaky gut. Since we started her on L-Glutamine again, she is much happier, with good appetite and always cheerful. The biggest change of all, previously Yasmin has rarely been as close to her Daddy compared to Maya. She always has great fun with Paul whenever they are playing together but she rarely seeks him out for company. Since restarting L-Glutamine, Yasmin constantly seeks out Paul, always looking for him when he’s gone, she is very loving and attached to her Daddy compared to before. It is heartwarming to see how she dotes on him and vice versa. I al
so introduced 5-HTP to help her with sleep, melatonin did not help when her yeast issues are flaring up. We also never forget Epsom salt baths daily.

I look forward to our next appointment with our biomed doctor for more insights on what else we can do for Yasmin. But for now, we are pleased to have a cheerful, illness-free girl again.        

>A Good Night's Sleep


I was recently reminded by how good sleep is generally in our home right now. It served to remind me to appreciate and not take for granted the good night’s sleep that we have all enjoyed for the past year or so. For the past 3 months, both the girls have been falling ill constantly. As usual, when children are sick, it also affects their sleep as well as the parents sleep. Having just come back from a quick little holiday with Paul, just him and I alone, we both enjoyed 2 nights of great sleep. Looking back, the sleep fairy has been extremely good to us in the past year. I had forgotten all the sleepless nights we had and how I used to crave even a straight 3 hour stretch to sleep. As a Mum, if your kids don’t sleep, YOU don’t sleep right? Since sleep disorders are a common issue for most ASD kids, I needed to remind myself of the luxury and privilege that I now have, a guaranteed good night’s sleep most nights. Nowadays, if they’re not sick, both girls would be in bed by 7.30pm and would stay asleep until 6.30am. Usually they will fall asleep by themselves without much fuss, but occasionally they would cheekily get out of bed again, so we would have to tuck them into bed again a few times, read countless bedtime stories and sing lullabies. But being the ungrateful parents that we are, Paul and I would moan over the 6.30am wake-up calls of them jumping on our beds, giving us kisses and cheerful “Good mornings !” How times have changed, how easily we forget…….

When we first started intensive Biomed, we worked out our priorities together with the doctor. This determined the first course of action and treatment and addressed our most pressing issues. First and foremost was sleep! Throughout Maya’s entire life, even from the day she was born, she always had sleep issues. A typical newborn would stay asleep for 23 hours a day, whereas Maya would be awake for 12 hours a day. For the first few months of her life, she hardly ever stayed asleep long enough like other kids. She would fall asleep while breastfeeding and I remember having to wake her up so that she could drink her fill. When she was a baby, she hated sleeping in her cot, preferring to sleep in our bed, tucked between the 2 of us. Unfortunately, though she would sleep, Paul and I couldn’t for fear that we would accidentally squash her.

When she was born, we had 4 main issues to deal with. I had difficulty breastfeeding her, getting her to sleep or stay asleep, dealing with constant pooping and her constant crying.This was going to be a pattern for much of her life.  Breastfeeding was hard!! She had difficulty latching on, she couldn’t suck properly, the milk flow would be too much for her causing her to gag, she would scream for milk, but when trying to feed, she’d scream as if in pain. I had mastitis twice and was on antibiotics while breastfeeding her. Her feeding was so erratic that it affected my milk flow, there were 2 occasions when my milk supply dried up. I had to painstakingly express milk all day long for up to a week trying to get my milk supply up to the previous level. Even when I expressed milk and fed her by bottle, she needed the slowest flow nipple and could only drink not more than 2oz at a time.  If she drank too much or too fast, she would projectile vomit. I remember many many times of cleaning up the car, the bed, the floor and changing her outfit and mine many times a day due to her throwing up. She required small feedings very frequently. I remembered breastfeeding her every hour for the first 3 months. When she was 4 months old, she only needed feeding every 2 hours. 

At that time, I knew that the mother’s diet would affect the breastfed baby, thus I was careful of avoiding caffein during and after pregnancy. Also friends and family had reminded me to stay away from foods that caused “angin”. However, in hindsight if I had known to stay off casein and gluten too, things may have been different. Even though at that time Maya was never fed any formula or milk-based products, I didn’t realise there was a lactose, dairy or casein issue involved. A child can still ingest it through the mum’s breast milk. When I was breastfeeding, I was constantly hungry, I craved chocolate milk and yoghurt. There were many varieties of yoghurt in Sydney and I loved the  fresh greek yoghurt with mixed summer berries from David Jones, Paul would buy me tubs of it. I also ate freshly baked gourmet breads and pastries everyday, now I know better…….. 

After 7.5 months of breastfeeding, Maya refused to drink from me and preferred the bottle so we moved her on to formula. I envied those other mums whose kids would drink a huge bottle of milk in one go, then fall asleep for hours. With Yasmin, it was so different. She slept well, she fed well and we only had to change her nappy 6 times a day. Because Maya was my first born, we didn’t know any better. We thought 12 poopy nappies a day was normal. We thought feeding every hour was normal for a 3 month old baby. But what I knew was abnormal was her sleeping only for 20 minutes at one time. However, no one could give us any insight on it. 

Since she was 3 weeks old, Maya would scream and scream from 6pm until 10pm every night. This went on for 4 months! We would try to feed her, change her, rock her, swaddling, anything that would calm her down. Usually, swaddling her very tightly and rocking and swaying her hard whilst walking around and around very fast would help. For 4 hours every night, Paul and I would take 1 hour shifts, both of us trying to soothe her. Yet, she would continue to scream bloody murder. Doctors would tell us it was colic and gave us some anti-colic medication which didn’t work. We were exhausted and worried about our child, but we could’t find any answers. Her crying was always high-pitched at the loudest volume, her cries were so blood-chilling that people were afraid to come to our house or invite us anywhere. We finally had an inkling that Maya had sensory issues, whenever we took her out to the shops or for an outing in the day, at night her screams were more frantic and lasted longer. If we kept her at home all day long, with no distractions or visitors, she would have an easier night. She’d still be screaming, but it was only for 4 hours, rather than 6 hours straight. This eventually got better, especially since we finally got a maid when she was 4 months old. For the first time ever, Paul and I managed to sit down to eat together while the maid would rock and soothe Maya. I remember days when I never had a chance to sit down, because Maya needed to be carried and rocked all the time.

When we finally weaned her on to solid food, it was a struggle. She did not like to eat. Mealtimes would take up to 1 hour, just to coax 2 tablespoons of food into her. She continues to be a picky eater up to this day, with a very small appetite compared to other kids. However, when she was 1.5 years old, I moved her on to fresh milk. She loves it so much and could drink up to 1 litre a day, which is a lot for her. And she loves bread, she would happily eat bread and drink milk all day and nothing else. We noticed the addiction, but nontheless we were happy that we could feed her nutritious meals by making pizzas and sandwiches which also contained protein and vegetables. We noticed her love of milk, but we have been taught that fresh milk is good, lots of calcium and nutrients right? She would drink a 6oz bottle, then she would be all dopey and sleepy and goofy. She acted like someone on drugs, all high and woozy. Initially we thought it was funny, until years later we learnt about the opiate effects of casein and gluten. 

She would have explosive bowel movements 12 times a day in the first 3 months. We did not know this was abnormal. And once a day, every day, her poop was so explosive that it would burst out of her nappy and cover her entire body. Her little bodysuit would be soiled from the knees up till halfway up her back, sometimes she would be covered in her poop from her neck down to the ankle. We threw out so many outfits because it would get so soiled.  She also had nappy rash, again and again. We were still in Sydney at the time and when I showed her poopy nappy and her red sore bottom, our well-respected and experienced Australian paediatrician said fully breast-fed babies are not supposed to have diarrhoea and they are not supposed to have nappy rash. Errr……… “Doc, I don’t care whether they’re SUPPOSED to or not, but you can see for yourself the diarrhoea and the nappy rash. I fully breastfeed her, yet she still has diarrhoea and she has bad nappy rash”. He didn’t have any answer for that, just kept saying that she’s not SUPPOSED to have them. I don’t care what medical books say, she DID have them, so help me out here will ya? Can you explain this doc? Can you help my baby? 

From the very first day she was born, Maya didn’t sleep well. Paul spent the 4 nights in hospital with me, sleeping on the floor.  The hospital advocated the baby sleeping or rooming in with the mum immediately from birth, in order to facilitate bonding. There were no nurseries where babies are placed, all babies roomed in with the mums unless they were in ICU or if the mum had complications. The nurses would always be on hand to help, but Paul was and still is an amazingly hands-on dad. Because I couldn’t get up from bed for a few days after the Caesarean birth, Paul took charge of changing her nappy, rocking her and burping her. He even gave her her first bath, even for the next few weeks after because I was afraid to bathe her myself. In hospital, Paul would hand Maya to me whenever she needed to be fed. She would not sleep in her bassinet, preferring to sleep cuddled up next to her Daddy even from her very first day. She loved being held by Paul, he would sleep on a mattress on the hospital floor in my private room. She would cuddle up to him, her little face tucked against his chest. Only then, she would sleep peacefully. I remember nights in the hospital when she would scream and scream and I was not able to get up from my bed. Paul would rock her all night long, walking down the dark hospital corridors while trying to soothe her. Even while we were all holed up in hospital, Paul still had work to attend to and would try to catch up on his emails. He would sit on the floor in front of his laptop, Maya cuddled up in his arms whilst typing out an email. 

As a young baby, Maya would fall asleep for 20 m
inutes and stay awake for 1 hour, then sleep for another 20 minutes and so on. By the time she was 2 months old, at night she eventually managed to sleep for 2 hours straight. Then wake up again for another hour to drink milk, a nappy change, then another half hour of rocking her back to sleep and she would sleep again for 2 hours. Usually, she would wake up cranky and crying, even after a somewhat long sleep. This was how life was like in the first years of her life. 
However, when she was 1 years old, she finally managed to fall asleep by herself without much difficulty and would sleep for 12 hours straight at night. We would limit her daytime naps to only once a day, and then only for 1 hour. We wouldn’t let her nap too late in the day, otherwise she would be up all night. It was mean, but that was the only way we could cope. However, even though she slept well at night, during the day time was very tough. We had to deal with her tempers, meltdowns and mood swings. It wasn’t quite as bad as after she regressed into Autism, but it was taxing enough for us. 

But throughout all the difficulties and challenges, Maya developed and achieved all the milestones at age-appropriate levels. Her growth chart and well-baby visits recorded normal development. She received all her vaccinations on time and we combined both Australian and Malaysian vaccination schedules. Therefor Maya received more vaccinations than the average Australian or Malaysian child. Her last vaccination was for Meningococcal C. She was 1.5 years old then, about 4 months after her MMR and Varicella vaccination. We were living in Sydney then, the vaccination was give 1 week after Yasmin was born. Before that, there were many videos and photos of how happy and interactive Maya was. She didn’t really talk spontaneously, but she would label things on the posters for us, when asked where’s Mummy, she would point to me. When asked who that was, she would happily tell us their name. She had a big vocabulary and could count to 20, she knew all her alphabets. Though she never did call me Mummy ever, she knew where I was and would always want my attention and be with me. She had a sparkle in her eyes, she was full of fun and played well with other kids.

Looking back, we realised she started to plateau developmentally and she slowly regressed. She talked less and less, her tantrums and aggression were worse. She retreated more and more and preferred to be alone and her sleep deteriorated. Maya constantly would wake up in the middle of the night and stay awake for 2-3 hours, singing, laughing or talking to herself. Or it would take her a long time to fall asleep. She also kept getting constipated, medical records showed many visits to the doctor with a prescription for more laxatives. And her behaviour and condition deteriorated until she was finally diagnosed with Autism.

Unfortunately, only years later with the hindsight I have now, I now understand why Maya was such a difficult baby. And why she eventually regressed and became the 1 in 100 to get Autism. 

Obviously, when we started biomedical, sleep was our first priority, years of sleepless nights has taken it’s toll on us. So getting her sleep sorted out was by far the most important thing for us, rather than the Autism behaviours. Dealing with her behaviors was extremely challenging enough, but doing it day in and day out on very little sleep was just too much for us. The GFCF diet helped by reducing some of her food cravings. By eliminating casein and gluten, this also caused a reduction in gut issues. A lot of sleep issues are directly related to GI disorders. Since we took out casein and gluten, and later introduced digestive enzymes, she could process her food better. Thus reducing her reflux and colic, which are frequent culprits when dealing with sleep issues in kids. We also used melatonin for the first few months to help regulate her sleep patterns. However, melatonin alone will not resolve the underlying sleep disorder. Once we started intensive biomedical treatments, we eliminated all the IgG reactive foods including soy and eggs, based on her IgG Food Intolerance Test results. We replenished her with magnesium, which has a calming effect and gave her high doses of casein-free multi-flora probiotics. Magnesium and probiotics also relieved her of constipation, another culprit to consider if your child has sleep issues. However, only when we started doing several rounds of anti-fungals, then her sleep issues were totally resolved. Fungal or yeast overgrowth is a common cause for night awakenings followed by laughing and giggling. Yasmin however had sleep issues whenever she had bacterial overgrowth, this would also include bloated tummy, crankiness and smelly abnormal stools. 

Therefor, whenever my children have sleep issues, I always go through my checklist;
1. Diet – were there any casein, gluten or other infractions such as MSG, preservatives, colorings, high salicylates, too much sugar etc
2. Is she constipated? If yes, then check the possible causes eg if she’s getting enough magnesium, diet infraction or yeast overgrowth. With Maya, once we resolved her constipation and yeast overgrowth, her sleep improved 100%
3. Is it due to yeast-overgrowth? Possible clues for my girls include laughing middle of the night, during the day there is giddy, silly behavior, standing upside down, lots of climbing and jumping off furniture, eating too much sugar or yeast feeding foods, scratching bottom, biting toes, rash, itchiness, constipation
4. Melatonin – would a few nights on melatonin resolve the issue? If no, then check the other causes. Also, hyper kids are not able to regulate serotonin levels amongst other things, serotonin is the precursor of melatonin. At one point, it took a long time for Maya to fall asleep, usually we would need to rock her for 1-1.5 hours every night! During those moment, melatonin helped her to fall asleep faster and easier.
5. Magnesium deficiency – increasing magnesium may be calming
6. Folinic Acid – for some kids on MB12, it may cause hyperness. Tempering it with folinic acid may have a calming effect. Some may need certain amino acids if they are deficient.
7. Is it GI problems such as bacterial infection? Bloated tummy, low appetite, tantrums and diarhhia are usually followed by sleepless night in my home.
8. Are they ill? Perhaps they have a virus, sore throat or fever or colds and flus, these would affect sleep. Especially if their nose and sinuses are congested and it affects their breathing at night. 
9. Is there enough calming treatments? Warm epsom salt baths at the end of the day is usually calming for our kids, gentle massages by mummy also helps to calm them down.
10. Sleeping arrangements and routine: is the room temperature too hot or too cold, is my child shivering or sweaty, is the room too dark? Maybe your child may be comforted if there’s a nightlight. For my girls, I installed blackout curtains so that the morning sun would not shine so brightly waking them up too early. Do they share a room, is their sibling waking them up? If they share a room with the parents, is the child being awakened by your husband’s loud snoring? Most kids respond well to a set routine, therefor try to establish a good night time routine .
11. Sleep pattern & habits – do they still have an afternoon nap, is the nap too long or too late. Is it possible to either limit the time they nap or take away nap time completely. Remember, anyone child or adult, if we have a nap in the afternoon, chances are we will be well rested and won’t feel sleepy until midnight. If we are only able to sleep a total of say 10 hours a day, then if we take a 3 hour nap in the afternoon waking up at 5pm, chances are we won’t go back to bed until 12 midnight, and will wake up fresh and rested at 7am. Simple math right? 

The challenge here is when the child is so exhausted in the day time after several hours of intensive 1 on 1 therapy, they really really need to nap. It seems cruel to take it away from them. However, in the end the mum ends up utterly exhausted too because they have to deal with a wide-awake active child until midnight. Therefor, we have 2 choices. Either follow the child’s routine ie. accept the nap time and hopefully you get a chance to nap and rest when they do, accept the fact that you will only be able to go to bed at midnight every night. Or the 2nd choice is to try to change your child’s sleep pattern, this is quite difficult according to most parents. However, due to desperation, this is what I did. We started home based ABA when she was 2y9m, she still needed a 2 hour nap everyday at 1pm. So after the morning ABA session, she’d have a quick lunch and have a nap. However, sometimes she wanted to sleep longer. Many times we had to wake her up because the therapist had arrived. However, if woken up prematurely she would be extremely cranky throughout the day, even during therapy times. Also, because of this, we couldn’t get the maximum amount of hours of ABA that Maya required. 

Therefor, I tried all means possible to keep her awake during the daytime with tv, toys, snacks, playing games, ANYTHING that would keep her entertained and not want to go to sleep. And usually by 5pm, she would be dead on her feet and try as we might, she would fall asleep for 5 hours straight and wake up at 10pm! Of course, whenever this happened, she wouldn’t go back to sleep till 3am. After a few weeks of this extremely exhausting pattern, we eventually managed to keep her awake till 6pm, then 7pm. Simultaneously, I would give her melatonin WHILE she was sleeping, in the hopes that it will keep her asleep for a few more hours. When she was overtired, it also took a long time to calm her down enough to fall asleep. It took a couple of months of even more worse broken sleep though, but eventually we got there. By the time she was 3y1m, she could stay up the whole day even with a full day of ABA with no nap. She
would be cranky, overtired and irritable in the late afternoon and always falling asleep, but we persevered and cruelly kept waking her up and keeping her awake until  she’d fall asleep exhausted at 7pm. After that, I’d sneak in a small bottle of milk with 2mg of melatonin around 11pm and she would only wake up at 7am the next morning. 

However, as she grew older and her body grew healthier and stronger, she was no longer as exhausted by 7pm. She no longer needs melatonin after the first 3 months of us regulating her sleep cycle. Though it seemed cruel at first, eventually Maya got used to the routine and was well rested and had enough energy to get through all her therapies and the demands of the day. Best of all, Paul and I get to have the evening together. We get to have some quiet relaxing time together and can look forward to a good night’s sleep. 

For my girls, after we have successfully taken away their nap times and they are able to sleep from 7pm – 7am or so, we try to have this routine for the past year. After dinner, they have a warm epsom salt bath together, often with me included, we brush our teeth together and we all choose our favourite pyjamas or nightie. Then when I can, a nice massage by mum with perhaps glutathione lotion, MSM cream or magnesium cream. If not, a simple lavender based oil or lotion is calming too. Then the girls get into bed, the air condition at a nice cool temperature, the air purifier switched on, curtains shut tight and a soft nightlight on while Daddy reads a bedtime story. Then, they have a nice bottle of rice milk with melatonin perhaps. I tuck them into bed and I kiss and hug them every night ever since they were newborns and I always tell them how much I love them, how proud I am of them, I say thank you to them for a lovely day, and that we’ll have another happy day tomorrow. I let them know how happy they make me feel and that I hope I made them happy too. I tell them how brave and clever they are. I tell each girl private words of love and affection. I tell them to have sweet dreams and that I’ll see them in my dreams. Every night whenever I tuck them into bed, I never fail to tell them this. After years and years of whispering my love to them in their ears, eventually Maya and Yasmin started telling me good night and that they love me too. Good night and sleep tight everyone………

>Bathrooms, Big School and Uniforms….

Every little milestone my girls achieve is another celebration in my home. Big or small, whether it was at age-appropriate developmental milestone or if it came 1.5 years later. Based on many accounts of parents with either neuro-typical or children on the Autism spectrum, their kids were toilet trained (fully or partially or only for daytime) around the age of 2.5 – 3 years old. This turned out to be a struggle for us.

Maya developed typically eversince she was born, hit every developmental milestone on time. She was crawling, walking, babbling and talking at the appropriate age. Apart from being cranky, fussy, poor feeder, poor sleeper and prone to epic tantrums, she developed age-appropriate skill sets up until the age of 1.5 years old. This was when she received her last and final vaccination – the Meningococcal C, a requirement of the New South Wales Australia Health authority. She had a combined vaccination schedule based on both Australia and Malaysia’s health requirement. This was also during the month that her younger sister Yasmin was born in March 2007. Very soon after that, we also got Maya started on drinking fresh cow’s milk.

For the next 6 months, the regression was not very apparent to us. Mostly due to the fact that we were preoccupied with our 2nd daughter. However, by early 2008 I started to notice that Maya did not learn any new skills, even though she had a large vocabulary of words, she is not progressing to actually communicating with us. She continued to communicate with us through pulling our hands or most commonly, by throwing tantrums. She did not label anymore words, she spoke less and less. Though she would talk and sing a lot when she woke up at 2am. Neither did she seek out our company. A friend actually admired me, saying that it’s so great that Maya is quite happy to play by herself, that she wasn’t clingy to me nor did she require me to entertain her all day long. For 1 second, I actually thought yes, I’m lucky. I have time to concentrate on my 2nd daughter without feeling guilty of neglecting Maya. However, deep down I yearned for her to call me Mummy. She was perfectly content to spend all day in her room, playing quietly by herself. I wasn’t quite sure what she did, but she seemed contented. There were many more signs of her regression, loss of previously acquired skills as well as the lack of new development.
After the official Autism diagnosis at age 2y8m and getting on with the work of therapy and biomedical intervention, we tried to introduce potty training when she was nearly 3 years old. No effect whatsoever. Not wanting to push it, we tried again when she was 3.5 years old. Again, no luck. We enlisted the help of our hardworking ABA team, taking her to the bathroom every hour. After 6 months of toilet training with ABA methods, when she was 4 years old in October 2009, Maya finally started peeing on the potty regularly. However, at home she would insist on using the small potty, rather than use the regular toilet. This coincided when we started her on TMG. Coincidentally, she was able to tolerate clothes better too and actually allowed us to put on nightgowns for bed. The fights we used to have trying to get her dressed was long gone.
She also insisted on wearing a nappy when doing a bowel movement. She would never poo poo on the potty or the toilet. We tried ABA techniques and used social stories. Usually, Maya responded very well with social stories and we managed to resolve quite a few issues using them. However, she was pretty verbal and had great cognitive function by then and always insisted that she can only poo poo in a nappy. She would crouch half-standing usually in a corner of the living room and strain.
By then, we had resolved a lot of her gut issues. She no longer had constipation or incontinence and we were able to keep her recurrent yeast overgrowth under control. However, 3 weeks ago she started having constipation again. She would have a bowel movement every 3 days and it was either very hard and pebbly or very soft and little. This affected her behavior and appetite to a small degree. Our usual methods of relieving it didn’t seem to work. Our DAN doctor surmised that it was another yeast infection, as yeast overgrowth can cause constipation. So we put her on a course of my favorite anti-fungal Diflucan. As most of you already know, yeast overgrowth tend to recur time and time again in our children. Historically, Maya has responded very well on Diflucan. She was calm, focused and ‘sparkling’. There’s no other word to describe it, Maya was like the real Maya that I knew existed underneath the weight of Autism.
We also did another urine Organic Acid Test by Metametrics Lab. The previous OATs was done 9 months ago, since then we have done much to address Maya’s biochemistry issues. We needed another look at her current position and see if there are other things we can fine-tune. The recent OATs confirmed high presence of yeast metabolites. Once we put Maya on Diflucan, her bowel movements became regular and the texture is normal. There was some slight die-off however it was a small price to pay for the improvements we saw later.
On the 3rd day she was on Diflucan, for the first time ever Maya allowed us to seat her on the normal toilet to do a poo poo. This was a huge achievement for Maya, we were so excited that my husband took a video of Maya sitting on the toilet doing her first poo. This continued consistently every day for the next few days.
Maya was on a 2 week course of Diflucan, however I discovered we did not have enough capsules to last us for 14 days. In the midst of communicating with our DAN doctor and trying to get more stock from Malaysian pharmacies, Maya missed 2 days of the anti-fungal. On the 1st day without Diflucan, Maya refused to poo on the toilet and demanded a nappy instead. After a consistent week of doing poos in the bathroom, I was disappointed. However we realized that by missing the anti-fungal, Maya had difficulty doing a bowel movement while sitting down. She needed to stand half-way crouched over, thus the need for nappies. On the 2nd day she missed the Diflucan, for the first time in 2 months Maya did not inform us that she needed to go to the bathroom. She had wet her pants.
Stopping an anti-fungal before the course is fully completed is akin to not completing an antibiotic course. It may cause another flare-up of yeast overgrowth. We managed to obtain more Diflucan, Maya has been back on it for 3 days now. Yesterday, she was back to pooing on the toilet again. We have been extremely lucky that when doing anti-fungal protocol or any other treatment, any regression or die-off reactions has been somewhat manageable compared to some other children. Even if there was major regression, it was always temporary and not permanent. She always got back to her previous level and managed to pick up any skills that she had lost. Her language and cognitive function is still amazing, her comprehension and compliance has consistently improved.
We are transitioning Maya to attend a mainstream kindergarten very soon. Recently I spoke to Maya and told her that very soon she will attend a new school. A big school called C******* School, with new teachers and new friends to play with. Also, that she needs to wear a uniform. Maya remembered all this and she told my mum all about it the next day when they came to visit. My parents had sent Maya off to her regular ABA school and Maya kept telling them that she needs to go to her new school C******* School and wear a uniform. I haven’t told anyone of our plans yet, so my mum was not aware of this. My mum came back to me and asked if everythi
ng that Maya said was correct. We were amazed at her memory and her comprehension, all this after only telling Maya about it once.
As you know, Maya has always had very strong preferences with clothing, preferring pretty pink dresses with spaghetti straps. So getting her used to the idea of a uniform was important to me. I told her “You must wear a uniform at C******* School. But when you go to Stepping Stones, you can wear whatever you want” Maya thought about it for a moment and declared “I wear a uniform to C******* School, but I can wear a dress to Stepping Stones”. My clever little girl worked it out all by herself! I wonder how she will do with the new uniform, it’s got short sleeves and has a blue checkered print…..

>Sleep Issues

Sleep issues are a common problem in children with ASD. Lack of sleep, late bedtimes, difficulty falling asleep, night terrors, recurrent night awakenings, laughing or talking when waking up at night, light sleeper, broken sleep, insufficient sleep hours according to age-appropriate levels, prolonged daytime napping especially for children older than 4 years old perhaps and other common sleep issues. This affects the child’s development and behavior. Sleep issues also affect siblings who share a room. Subsequently, parents are also affected by the continuous nights of broken sleep. Broken or lack of sleep in adults can lead to depression, irritability, stress, affects our ability to cope and think, it affects our work, home and life in general.

Maya had sleep issues from the day she was born. A newborn usually sleeps 20 to 22 hours a day, Maya was awake for 12 hours a day for the first 3 weeks of her life. During the day she would fall asleep for 20 minutes than wake up howling and screaming. An hour later she would sleep for another 15 mintues and so on all day long. She would wake up every hour at night to be fed until she was 2 months old, it improved slightly as she grew older. We would take 1 hour just to get her to sleep, by rocking and cradling non-stop. She managed to go to sleep by herself and sleep through the night when she was 1 years old, this lasted for 12 months. A whole year of uninterrupted sleep for Paul and I, however during the day we still had to deal with her increasingly difficult behavior.
However, the night terrors and broken sleep started when she was 2 years old. She would alternate between inconsolable crying and screaming one night, and the next night she would wake up at 2am talking and singing to herself in the dark till 5am. We tried many techniques to get her back to sleep such as giving her more milk, changing nappy, rocking and cuddling, then not giving her milk in case it reinforced her sleep awakenings etc but nothing worked. This pattern continued pretty much every night for the next 8 months. At this time, Maya was 2y8m – she was diagnosed with mild to moderate Autism Spectrum Disorder.
We immediately put her on the gluten-free and casein-free diet. Incidentally her sleep improved, she would sleep 12 hours straight. Though the night time talking and singing would recur at times. Only when we started treating her gut issues especially yeast treatments that she now sleeps well through the night. We also found out that the girls would wake up if the room was too hot or too cold. We also refined her diet further by eliminating IgG reactive foods including soy and eggs, reducing sugar, artificial flavorings including MSG and colorings. We reduced allergens and dust accumulating things in their bedroom, ripped up the filthy wall to wall carpeting, boarded up the old centralized air conditioning duct which was moldy and the thermostat control was broken, installed an air purifier and a new air conditioner. We used melatonin especially in the first few months of early biomed, it helped but only to a certain extent.
In biomedical circles, sleep issues in Autism are commonly related to diet and gut disorders. Treating sleep issues include the GFCF diet, reducing food sensitivities, probiotics, anti-fungal, magnesium, digestive enzymes, melatonin, treating any gut issues including inflammation, constipation and reflux. Constipation, allergens, yeast overgrowth, food intolerance and illness are common culprits. It would help to reduce stimulating activities such as boisterous play and watching tv just before bedtimes. Not eating too close to bedtimes may also help as well as more physical exercise during the day.
Melatonin will help regulate our sleep cycle, however this is only a temporary solution. It will only help to a certain extent, it is not a substitute for healing the underlying medical reasons for sleep issues such as GI disorders. All the melatonin in the world will not help a child to sleep if the child is experiencing stomach discomfort, tummy pains, yeast overgrowth or allergic reactions.
Yasmin slept well throughout until her bout with Rotavirus. Since then, her night awakenings have been constant. Since the girls now share a bedroom, this is affecting her sister’s sleep too. Her sleep has improved considerably since refining her diet together with gut treatments. Most importantly, we dealt with her recurrent bacterial infections as this affected her sleep and other aspects of her behavior. She has slept well for the past couple of weeks uninterrupted, but last night she was up from 2am-5am talking and singing. Looking back, we realized that yesterday we took her out for lunch but not Maya and perhaps the food was prepared with MSG or something that affected her. Usually the girls only eat home-cooked food. Hopefully she will be ok tonight.
In the past 1 year, both our girls have had several night awakenings, but we could always trace it back to either eating too much sugar, yeast overgrowth, constipation, bacterial infections, infractions in her diet or due to illness such as cold, flu and fever.

>Natural Yeast Treatments


Yeast overgrowth leads to a host of behavioral problems common in children with Autism Spectrum Disorder. Nystatin and Diflucan are pharmaceutical anti-fungal treatments, they are effective in most children. However many parents are concerned about the long-term effects of these medication. Some children may not tolerate them well long-term due to kidney and liver function.
Not all children will have the same response to each anti-fungal. You may need to collaborate with a trusted doctor to provide an effective yeast protocol for your child. Some children may require several different anti-fungals taken one at a time or concurrently.
Natural Anti Fungals
There are many natural anti-fungal remedies, however the effectiveness may be child specific. See below where you can purchase them;

1. Candidase – these are enzymes that digest the cell walls of fungals. Buy from Back to Basics
2. Candex – same as above, just different brand. You can buy from Dr Erwin
3. Saccharomyces Boulardii – these are good yeast that attacks bad yeast. From Dr Erwin
4. Olive Leaf Extract – Vitakids Singapore
5. Oil of Oregano – very powerful anti-fungal and anti-viral properties. But very strong taste. Vitakids Singapore
6. Garlic extract – Vitakids Singapore

There are many others such as caprylic acid and grape seed extract (GSE) but I’m not sure where to get them.

Apart from choosing the appropriate anti-fungals, there are also other aspects of the treatment to be addressed. When implementing an effective anti-fungal treatment for your child, you should look at it as a whole. Killing the yeast is only one aspect of the yeast protocol. The anti-fungals are only as effective as the other aspects of your child’s treatment as a whole. Even the strongest anti-fungals will only work to a certain point if you don’t stop feeding the yeast. And yeast colonies will continue to thrive and return in certain favourable conditions. And if your body is not flushing out all the toxins released by killing the yeast and dead yeast cells effectively, it will remain in the body causing other behavioral issues. For my daughters, I try to address each aspect of yeast treatment;
1. Kill the yeast
2. Stop feeding the yeast
3. Discourage the yeast from returning
4. Detox
1. Killing The Yeast
This is where anti-fungals come in play, either pharmaceutical such as Nystatin or Diflucan, or natural remedies. Choosing which is best for your child requires some experimentation as well as the help of a trusted doctor. You may need to try several anti-fungals to find which works best for your child. Also, you may need more than just 1 anti-fungal. For some children, a combination works best for them. Again, you will need to experiment which combination works best.
2. Stop Feeding the Yeast
You need to reduce yeast-feeding foods especially sugar. All forms of sugar feeds yeast from honey, organic maple syrup to carbohydrates. It is up to you to decide on managing your child’s diet and which sugars you are willing to allow or reduce. Some children react favorably just by reducing sugary snacks, but some children may have to go so far as reducing fruits or most carbohydrates. Also, a good digestive enzyme to digest carbohydrate helps such as Kirkman’s Enzyme Complete with DPP-IV or TriEnza, you may want to add No Fenol or Phenol Assist as well.
3. Discourage the Yeast from Returning

Yeast colonies thrive in certain conditions, you will need to make your child’s body inhospitable and discourage yeast from growing. An altered PH balance such as an acidic gut environment is ideal for yeast-growth. Replenishing with lots of probiotics also leaves less room for the yeast to grow. A dysfunctional immune system will also contribute to yeast overgrowth. Regulating the immune system acts as a defense mechanism against various pathogens including bacterial, fungal and viral. Zinc and Vitamin C are important supplementation for the immune system.
4. Detox
When killing yeast it releases toxins, you need to ensure that the dead fungal cells and toxins are flushed out of the systtem. Address any constipation issues, daily bowel movement is important to ensure all toxins are removed from the body. Adequate magnesium helps with bowel movement. Epsom Salt baths or magnesium sulfate cream assists in the sulfation pathway, which is an important detoxification pathway in the body.

Die-Off Reaction
During die-off periods, our kids may experience headaches or bowel cramps. Which explains the behavioral problems such as hyperness, waking up at night talking and laughing, hyperness, cravings for sugar and carbs, irritability, crankiness and other reactions. For die-off reactions, Epsom Salt baths and activated charcoal will help. Also, reduce the anti-fungal dosage and increase it very slowly.

As some of you may know, we worked very closely with Dr Erwin to address Maya’s recurring yeast infections. We did 1 month course of Diflucan, followed by 3 months on Nystatin, followed by 1 month on Ketaconazole together with Candex 1 capsule in the morning and 2 capsules in the evening. We then added on S.Boulardii 1 capsule 3 times a day. Now, we are doing 1 capsule Candex morning and evening together with S.Boulardii 1 capsule 3 times daily. I am currently reducing the anti-fungals whilst observing for any more recurrent yeast flare ups.
Diet wise, I was not willing to forgo rice or gfcf bread so the Specific Carbohydrate Diet was not practical for us. A GFCF diet without sweet snacks, cakes, biscuits, sugary cereal, no fruit but still drinking very diluted juice was convenient and effective for us. We were on a strict `no cookies, sweets or cakes diet’ for 4 months, then we allowed it to once a month, and we saw yeast-like behavior flaring up again. Eventually the flare-ups has reduced and the girls are now able to tolerate sweet snacks 3 times a week with no problems.
Maya had a highly acidic gut, we were not able to address this because the supplement tasted horrible. But for both girls we give 50 Billion CFUs probiotics daily together with a pre-biotic. And supplement with Vitamin C and zinc for their immune system. We give Epsom Salt baths daily and apply Magnesium Sulfate cream for the sulfation pathway. Apply L-Glutathione lotion to replenish her glutathione levels which are essential for the detoxification pathway, magnesium for better bowel movement and chlorella for detox. It took us 6 months to finally address Maya’s recurrent yeast overgrowth. For now, I would consider Maya to be yeast-free. However for Yasmin, her recent course of antibiotics and recurring gastro issues requires a lot more time and effort to address her yeast overgrowth.

>Life After Diagnosis – 2nd Time Around

A lot can happen in 2 weeks; even though Yasmin’s diagnosis was not totally unexpected, the shock and grief for us is still as strong as it was with Maya. And for most parents in our situation, having 2 children on the Autism spectrum (though one is borderline) means that you don’t have the time to grieve. Now there’s 2 different sets of supplements to dole out everyday, both with different biomedical protocols and behavioral issues to deal with.

Because of the many colds and flu viruses running around, both girls have had to deal with fevers, colds, coughs and sometimes all 3 at once in the past 1 month. When sick, appetites has waned and suddenly they’re spitting up the supplements that they used to take obediently. Having missed up to 1 week’s worth of supplements has made a huge negative impact especially on Maya. Suddenly, from a girl who’s so sweet and well-behaved, Maya has regressed and showing some of the behaviors that we thought are long behind us. She is experiencing anxiety and non-compliance in school, starting to tantrum at home, a lot of climbing and jumping and meltdowns. By missing some of the key supplements, her yeast issues have come back amongst other things.
She now refuses to wear clothes, screaming whenever we try to dress her. At night she would strip off her pyjamas and at times even her nappy. Seeing our daughter curled up sleeping naked in bed, freezing because the air conditioning is on and she had thrown off the blankets, is a very disturbing image for Paul and I. The past 1 week, she has started to wake up at nights, wanting to play and sing for several hours. She would wake up tired and too sleepy to perform well at school.
After seeing Dr Rina, we immediately started Yasmin on her antibiotics, anti-fungal protocol and healing her gut issues. And for the first 10 days, we did not see any behavioral improvements in her, mostly due to the die-off reaction. We also noticed more repetitive behaviors in Yasmin such as opening and closing doors and drawers, a lot of patting and knocking and tiptoe walking. However, she started to sleep through the night, her appetite is really good now and she hasn’t had any constipation lately. In the past 3 days, we noticed that Yasmin is no longer cranky and upset. She is happy, calm and smiling. But the self-stimulatory behaviors are still there.
Needless to say, both Paul and I have not had a full night’s sleep for a long time. We are mentally and physically exhausted and the many worries running through our minds are too long a list. We are going through a particularly rough patch and we will get through this. Our focus now is to get Maya back on track on all her supplements, increasing her anti-fungal protocol and try to deal with the tantrums and behaviors with patience, grace and strength. I will try to look past Yasmin’s behaviors and stims, not to freeze in fear that with every tiptoe or knocking, that Yasmin will not get a little closer and cross the threshold that is Autism.
Both Maya and Yasmin are the biggest joy in our lives, we show them our love each and every day. They are blessed to have a father as wonderful as Paul. He is strength, patience and love. Amidst all the chaos and uncertainties that surrounds a family affected by Autism, he has been our rock. He is Warrior Dad.

>All About Yasmin

My second daughter Yasmin is 2y5m, she was a happy easy-going baby, she fed well, slept through the night and pretty much a normal child. Her language and cognition is very good and she’s very affectionate. However, for the past 6 months we have noticed a gradual change in her behavior, she is often cranky, shows rigidity in behavior, uncontrollable at times and rarely smiles. Also, she started to have sleep problems, is now a very fussy and picky eater, chronic constipation and shows a lot of abdominal pain. We also noticed some stims such as tip toe walking, slight repetition in language and motion, always tapping and knocking on walls or furniture, she is always climbing on the arms of the sofa, straddling it while rocking her body and grinding her pelvis against it and we have noticed some eye stims recently.

However, throughout all this, her language and cognition has always been very good. But Paul also pointed out that we have not seen any developmental gains in the past few months, she is still at the same developmental level as she was 6 months ago. Because of what we went through with Maya, we also understand the genetic susceptibility of siblings getting the same condition. So we took steps to reduce the possibility of it; we put Yasmin on the GFCF diet for the past 9 months, she is also soy-free and egg-free. Her diet is organic and pretty much the same as it is for Maya. We did not give her the MMR however she did receive some vaccinations prior to it.
In January 2009, both girls were hospitalized for Rotavirus. Both Dr Erwin Kay and Dr Rina Adeline suspect that her regression was induced by the infectious and bacterial disease. There are many causes of Autism, we now believe that the Rotavirus tipped her over the edge. I also believe there she also contracted other countless bacterial and viral co-infections that were never tested, identified or treated for. We were on holiday in Phuket and Paul took the girls to play under the water sprinklers in the hotel garden. I kept asking them to stop because the water smelled putrid, plus the Thai gardeners kept shouting and gesturing at them to get away from the garden. We later found out that the filtration system is broken and water contaminated from the septic tank was used. Yeah, dumb but true. 2 days after we came back from Phuket, first Yasmin and then Maya was hospitalized. They were treated for Rotavirus, but it’s interesting to note that they were not tested for other types of infections or viruses, the doctor only tested for Rotavirus.
We did the IgG Food Intolerance test and the Comprehensive Stool Analysis. Her IgG levels are elevated with multiple food intolerance, she also has leaky gut, there are multiple bacterial infections, yeast overgrowth, digestive enzyme deficiencies, gut inflammation, oxidative stress and others. Her medical prognosis is chillingly similar to her sister’s, in fact some of her test results are worse than Maya’s.
Both DAN doctors confirmed that Yasmin is either borderline ASD or gradually declining towards the Autism Spectrum. We don’t know whether it will be Autism, ADHD or Aspergers, but I’m not waiting to find out. We are doing all we can to stop it now, starting with her gut issues. We have not done a psychological assessment, mostly because of time and financial constraints, but also we do not need a clinical psychologist to tell us what we already know. Also, some people including doctors are very quick to judge us as overly-worried parents because Yasmin’s language skills are amazing. And it’s unfair that because for the 5 minutes someone observes her, they come to the conclusion that she’s fine. As if that can be construed as a `qualified diagnosis’.
Yeah, but did they ever consider that during that 5 minutes, she is so engrossed with a new toy, chatting happily away, laughing and everyone is giving in to all her demands that she is not likely to throw a tantrum? No one else would know that it takes us such a long time to calm her down or redirect her when she’s in one of her tantrums and rages? No one else has to get her to stop humping the furniture, if they did then they’ll know that this is not `normal’ behavior. No one outside the family has ever experienced a night when she wakes up at 3am and wants to play for 3 hours. It’s come to point now that sadly, our officially-diagnosed ASD child Maya is so much easier and better behaved than Yasmin.
As parents, we shouldn’t let ourselves be blinded by Yasmin’s cleverness and precociousness. I could never avoid noticing some of her abdominal pain behaviors, she would insist on me holding her tummy, she would lean over tables and bed corners, pushing her tummy into it. I can’t help but notice that she is constipated for 5 days, her stools are always either very hard and pebbly or runny and soft. Her tummy is distended and she is extra irritable and cranky during constipation days. Her constant knocking and tapping is a sensory issue and also signs of calcium deficiency. Yes, a lot of her behaviors are considered normal 2 year old behaviors, but all together at once and there’s a sibling with ASD? Come on, I’m an Autism Warrior Worrier Mummy, you can’t fool me!



Candida is a type of yeast that is commonly found to be a problem in children with Autism. It resides in the digestive tract and candida can get out of control and grow if the immune system becomes dysfunctional. Many children show significant improvement when their yeast issue is treated. Some children have a really huge problem with yeast overgrowth and anti-fungal treatment is crucial.
Fungus is a complex issue because they are present in our food, air and our digestive tract. Excessive use of antibiotics means that numerous bacteria are becoming resistant to antibiotics. Antibiotics also kill protective bacteria (probiotics) in the gut as well as the pathogens. Candida will spread when there are less good flora in the gut. A diet rich in sugar and carbs also feeds the yeast thus resulting in over-growth. Also, watch out for a `mouldy’ environment, mildew and fungus grows in dark, moist places – you may find it in air conditioning units, old carpets and growing in certain parts of our homes.
Fungal and yeast infection may reside in many parts of the body, however we commonly hear about thrush where there are white patches in the mouth or tongue, vaginal yeast infection (such as candida) or athlete’s foot. In our kids, the yeast issue is predominantly in the gut or digestive tract.
Urine tests may determine the presence of yeast/fungal overgrowth. However, historical findings (parents observation) should never be ignored, most parents can tell when our child has a yeast flare-up by both physical and behavioral signs.
Some of the more common complaints reported by parents are rashes, eczema (body, scalp), funky-smelling scalp, itching, redness, scratching, climbing all the time, ‘standing’ on the head (bending upside down), bloating, flatulence, constipation, diarrhea, change of smell in the stool (yeasty, bready, foul or sweet). Itching and redness may be perianal, genital or anywhere in the body.
Other behavioral signs of yeast issues are demanding behavior, noncompliance, giddy and silly behavior, aggression, inappropriate laughter, sleep disturbances such as waking up in the middle of the night and laughing, stimming, hands over ears, chewing, teeth grinding, brain `fog’, seemingly `out of it’, loss of energy, cravings for carbs & sweets.
Yeast treatment
A combination of diet, probiotics, digestive enzymes and anti-fungal treatment is required. A doctor will need to prescribe a course of anti-fungal medication, commonly Diflucan, Nystatin or Sporanox. Diflucan seems to be the most effective in our kids. Most children require a long period such as a month on anti-fungals, a short course will not be effective. Some children will need anti-fungal treatment several times throughout the period of recovery because yeast & fungal overgrowth tends to reoccur.
A diet rich in carbs and sugar will `feed’ the yeast, so cutting down on carbohydrates and sugar is crucial. Reducing fruit & juices in the diet may be necessary. Yeast will feed on any form of sugar, irregardless if it’s organic honey, organic brown sugar or organic juice. Sugar feeds yeast, and it’s very addictive. Exposure to molds and fungals should be minimized, so check your home thoroughly for hidden sources.
Die-off period
During anti-fungal treatment, you will find a period of regression in your child; this is called the die-off period. The die-off reaction (also known as the Herxheimer reaction) shows that the treatment is working! Also, your child will probably have an incredible craving for sugar & carbs. This addiction to sugar is the body’s reaction to feed the yeast. Some of the behaviors of yeast die-off include irritability, lethargy, hyperactivity and stimming. Your child’s Autism behaviors will seem worse. Some parents report headaches or bowel cramps.
If it gets so out of control, you may need to cut back on the medication or `mop’ up the toxins with charcoal. Giving your child activated charcoal is one of the best ways to control yeast die-off. Charcoal absorbs the toxins that are released during the yeast treatment and will help to flush it out of the system.
Maya tested low for fungal & yeast, but her behavior at times just screams out Candida. She would climb everything, furniture, windows, cabinets and she would hurl herself of it jumping onto the hard floor. We could never keep our guard down, within seconds she’d jump on the edge of the sofa, jump down and I had visions of broken legs and limbs. She would scratch her bottom till it was red, she’d scratch her back till it bled. Occasionally we’d see big great spots on her face or body. She’d pick and bite her toes incessantly. She’d bend over with her head on the floor often, we thought she was looking at us upside down. Our doctor and I discussed Maya’s test results as well as her behavior. We made the executive decision to go ahead with anti-fungal treatment.
We are now on our 2nd course of anti-fungal treatment, her die-off reaction has not been as horrific as I expected it would be. Maya’s climbing has much reduced, her dare-devil feats of jumping off great heights have thankfully ceased and even though she’d pick at her feet at times, it has reduced greatly. Candida will be a pesky little monster that we’d have to deal with from time to time, if untreated it will go on to be a great big monster of a problem, resulting in more Autistic-like behaviors.
Jenny McCarthy’s son Evan had such a huge problem with Candida, and one of his core treatments was anti-fungals. They had to undergo several courses of anti-fungal and his doctor went all out to help Evan fight it. In fact, they underwent what is affectionately known as the Anti-Fungal Parade in DAN circles. And that was the key to his recovery.

>Scratchy Bottom & Itchy Feet


Maya had GI issues such as constipation, bloating, gassiness, very picky eater, a lot of pain behavior as well as yeast & fungal related behaviors. She would scratch her bottom all the time, occasionally there are peeling skin at the bottom of her feet and sometimes she would bite the skin off her toes. She hated wearing shoes and sometimes she would scratch her back till it bled.
Treating her GI issues was our most immediate concern, and we finally figured out that some of her behavior such as scratching and biting was due to yeast overgrowth.
One of the focus of biomedical intervention is to heal gastrointestinal disorders. 91% of children with Autism has gastrointestinal (GI) issues. Examples of GI distress include inflammation of the gut, abnormal intestinal permeability (also known as leaky gut syndrome), malabsorption, maldigestion, reflux esophagitis, colitis, yeast or fungal overgrowth and others. 70% of the body’s immune system lies in the gut, making it a very important part of your biomedical protocol.
Symptom –
GI symptoms usually presents itself as chronic constipation, diarrhea, abnormal stools, foul smelling stools, bloating and gassiness. Obvious symptoms such as these are easier to detect, however some children do not present these symptoms.
There are also other subtle symptoms or clues that a child has GI issues. Historical clues may include difficulty breast feeding, persistent colic, reflux, eczema, food sensitivities, picky eater, frequent antibiotics, abnormal posturing, self-injurious behavior and poor sleep. Our children may have a combination of these symptoms.
Some of the behavior linked to gastrointestinal distress include confusion, hyperactivity, short attention span, lethargy, irritability and aggression. It also causes headaches, stomachaches, constipation, gas pains, fatigue and depression. Reflux and intestinal discomfort may also be a reason for your child’s sleep problems.
You may require to do stool and urine tests for this, please refer to my previous blog on testing.
What causes it?
Gastrointestinal dysbiosis (imbalance) may occur in Autism through different means; frequent use of antibiotics causes a depletion of the good flora in our gut. The lack of beneficial flora will lead to an overgrowth of bad flora & bacteria such as clostridia. Damage caused by other environmental toxic assaults such as pesticides, heavy metals and chemicals may result in nutritional deficiencies. Food sensitivities such as gluten and casein causes damage to the intestine and the mucosal lining, which results in leaky gut and painful inflammation. Parasites and viral infections are also commonly reported in Autism children.
Yeast overgrowth
A combination of the lack of good flora and a bad diet results in yeast and fungal overgrowth. Foods such as sugar and simple carbohydrates keeps on feeding the yeast. Yeast or more commonly candida usually resides in the digestive tract. When the yeast multiples, it releases toxins in the body. And these toxins also impair the central nervous system and the immune system. Apart from rashes, yeast and fungal overgrowth may also present itself behaviorally.
Healing the gut
The basic protocol involves removing the allergens in food- the IgG food sensitivity test will help to identify what foods your child is allergic to. The GFCF diet is a very good start, also avoid yeast, sugars and artificial colors, flavorings and preservatives.
It’s important to replenish essential vitamins and minerals, give probiotics and start taking enzymes. Super Nu Thera, calcium and vitamin C is a good base to start with. Make sure you get the refrigerated type of probiotics – ask a pharmacy for probiotics multi-species at the highest CFUs you can find. I like to start at 10 billion CFUs a day, then work up to twice a day. A digestive enzyme of the DPP-IV variety is recommended with every meal. You can implement the diet, baseline supplements, probiotics and enzymes yourself.
Only take antibiotics if it’s absolutely necessary. Please make sure to replenish with more probiotics when taking antibiotics. Apart from killing the virus it’s supposed to, antibiotics also kills up to 90% of the good flora in the gut. When there’s less good flora, there’s more room for the bad flora to grow.
You will need the help of a doctor to prescribe a course of anti-fungal treatment to get rid of candida, some may need to treat clostridia, also anti-viral treatment for the viral infections and anti-inflammatory supplementation.
Healing the gut takes a long time but the benefits are enormous. Just by treating the GI alone does not mean that it will recover your child from Autism. It will take away the discomfort, allow him to concentrate and perform during therapy, it will regulate the immune system, give him a healthy body, improve his quality of life and most importantly it will take away the pain.
Nowadays, Maya is a happier girl, she has regular bowel movements, enjoys her food and is open to new textures and flavors. She is sleeping through the night, doesn’t crave for sugary treats and she no longer has dark circles under her eyes or red rimmed eyes due to food allergies. When Maya’s language improved, I asked her recently about her feet. She replied softly “It’s painful”. Now, Maya has a love for shoes and never ever scratches her bottom at all.