Please see here for a list of current biomedical practitioners in Malaysia, Singapore and Indonesia. All the doctors have attended Level I and Level II Clinicians’ Training by the Autism Research Institute http://www.autism.com. All of these doctors are licensed Medical … Continue reading
Recently, there has been heated opinions regarding the quality of our local Biomed doctors. Many unhappy experiences, lots of criticisms and too few praises. But I know for a fact that our doctors are doing a world of good for … Continue reading
A parent asked on the KL Biomed forum recently, “My son has been doing biomedical for 1 year, but he only just prescribed DMG now. Why the doc hesitate prescribing chelation for my son ?” After several feedbacks, it turns … Continue reading
>I’m happy to announce our 3rd Biomed doctor in Malaysia. Dr Yee based in Melaka has been a great source of support to the Autism community especially to Melaka families. I would like to welcome him to our ever growing list of integrative biomedical practitioners in Malaysia. Dr Yee attended the ARI Conference in California in October 2010. Please see below for his details;
Dr Yee Kok Wah
49 JCN Melaka Raya 13, TMN Melaka Raya Phone: 606-282 8088
City: Melaka | Country: Malaysia Email: Siberku@yahoo.com
I also list down the other 2 biomed doctors in Malaysia;
Sui Yin NG, MBChB, MNLP
Suite 116, 1st Floor, Medical Office Building 282, Jalan Ampang Phone: 603-42576998
City: Kuala Lumpur | Country: Malaysia
Eddie Chan, MBBS, MRCP(Edinburgh), MRCPCH(London)
16 Jalan Puteri 4/2, Bandar Puteri Puchong Phone: (60) 3-80623925
City: Puchong, Kuala Lumpur | Country: Malaysia Email: email@example.com
When choosing to work with a biomedical doctor or nutritionist, please read the introduction by ARI on the clinician registry. http://www.autism.com/pro_danlists_results.asp?International=true
Please refer to https://spectrummum.wordpress.com/2011/04/19/spring-2011-ari-conference-atlanta-georgia/ for the latest information regarding biomedical doctors in Malaysia.
>Many parents ask me whether I still consult with certain doctors, why do I consult with other doctors for 2nd opinions, is it because I do not trust the first doctor, how do I choose whose protocol to implement, how do I handle conflicting opinions and so on.
As you may know, both my daughters are still on biomedical treatments. Initially for Maya when she was diagnosed with Autism, and even though she has lost the Autism diagnosis, she still has lingering health issues. And Yasmin was regressing into Autism and prevented her from fully developing Autism. She is no longer at risk for Autism however like her sister, there are still medical and health issues to be addressed and monitored. Whichever doctor I consult at that time may depend on which specific issues I believe that doctor may have better expertise in. At times, I need a fresh set of eyes to give me a new perspective in certain matters. It also depends on whether that doctor has experience in certain products or technology which other doctors may not have access to due to where they are located or their training.
If I feel that a current doctor has exhausted his bag of tricks, that things have stagnated then I know it’s time to get a new set of perspectives. Remember that different doctors have different training, experience as well as seen a different set of patients. Also each doctor has different priorities and will emphasize on certain issues and may not have the same set of priorities as I do at that point in time.
So far, I have consulted with Dr Sundardas, a naturopath in Singapore, Dr Erwin Kay, an MD from Singapore, Dr Mark Westaway, an Australian MD who practiced in the UK but has since moved on to join the prestigious TRANSCEND research team in Harvard, Dr Rina Adeline, an MD and lecturing professor in Indonesia, Dr Anthony Underwood, a Syndey based MD specializing in Autism, Dr Kyle Van Dyke, an MD in the US who is also a frequent speaker at Autism Research Institute conferences, Dr Jeff Bradstreet, an MD in the USA who specializes in Autism, a member of the ARI and frequent speaker at Autism conferences internationally and Dr Michael Beilby, an Australian MD who also trained in holistic medicine and practices homeopathy. Majority of them are Medical Doctors. I consulted with these doctors for their different expertise for my 2 daughters, both with different sets of medical diagnosis and issues. I have learnt much from each and every doctor, they have helped my children in different ways, some more than others. Take note that I don’t jump from one doctor to the next after just 1 consult, I generally stick with one doctor and his protocol for at least a few months, otherwise it would be too soon to tell if his protocol is effective or not.
Because I live in Malaysia, certain products and supplements are not easily accessible to us here. Some doctors I chose from specific countries where they can get access to certain supplements. Some doctors are limited by their own country’s health regulation as to which products or treatments they can prescribe or practice. There are certain things a USA based doctor can do which a doctor in another country do not have access to and vice versa. Also some doctors are not able to supply certain products at a reasonable cost due to high taxes imposed by their country of residence. So I look to my other doctors to supply that particular product at a more reasonable cost. Dr Van Dyke and Dr Bradstreet both have children affected by Autism, whereas the other doctors do not if I’m not mistaken. They have different outlooks in matters of practice because they have gone through what we as parents live through every day. They have experienced firsthand how Autism devastates a family. However, all the other doctors still provided the same amount of commitment and support to us even though they do not have children with Autism themselves.
I don’t find any of their opinions to be conflicting, instead I find them to be a different perspective. And that’s what I’m looking for, to explore all opportunities and try different supplements. Each doctor has their own set of preferred protocol, dosage and supplements or medications. Some protocols worked spectacularly on my girls, some were appropriate for Maya, some failed in Yasmin and vice versa.
I have experienced the utmost professionalism and commitment from all my doctors. And each one has helped us get closer and closer to Recovery. I am open with my doctors on who I have consulted with, what protocols have worked for us and what has not. And I ask their help in improving the current protocol as well as exploring other issues which may not have been covered by a previous doctor.
I thank the doctors for their commitment in treating infections and GI disorders, I respect doctors for their willingness to explore different chelation protocols, I am grateful to doctors who prioritize the girls’ immune dysfunction, mitochondrial issues and low weight gain. I cherish the doctors whose advice brought on a huge leap in progress in better sleep, wearing clothes, toilet training and improved speech. I am blessed with wonderful doctors who support me whenever I bring up a new treatment that I learnt from a recent conference and their willingness to explore other possibilities with me. To their credit, they have never rolled their eyes at me whenever I come up with yet another hare brained scheme or whenever I debate with them over a difference in opinions. I have never been belittled for my ignorance, instead they support me in learning more about another treatment.
I am thankful for doctors who take the time to reply to my incessant emails. I apologize to doctors who have had to pick up the pieces whenever I try a protocol that failed, yet never were we reprimanded for trying new things. I received support, encouragement, hope and sage advice from each and every doctor. Most of all, I am thankful for doctors who listen to mothers.
It doesn’t mean that we should take all Doctor’s advice at face value and follow all instructions meekly. Many parents are afraid of asking what they think are stupid questions, there are no stupid questions. If you have an opportunity to ask and learn, do it. If the Doctor’s answer doesn’t satisfy you, ask again. Sometimes, the doctor is not good at teaching or explaining, rather they are better at actually doing than teaching. I don’t look for someone to hold my hand throughout this journey, the Doctor’s job is to recover my children, not to give me a one on one biochemistry lesson.
Many doctors don’t have the time to teach us how a supplement or medication works, I would rather use the consult time to interpret lab tests, discuss patient history, work on specific issues and how to rectify them. It is up to us to learn why doing Mb12 injections are crucial even though the test reports high amount of B12 anyway. No offense to them, many doctors are better at practicing medicine rather than giving a presentation or lecture on biochemistry. Some doctors speak in medical terms, and not able to relay the information in simpler language that us parents can understand. But all that doesn’t matter to me, what matters is that they are committed to our children and that our children thrive and improve under their care.
In my opinion, parents doing biomedical intervention should get a 2nd opinion at least once a year, ideally every 6 months if you can afford it. However, if you feel that having 2 different perspectives to be too difficult to manage and the result is a lot of confusion, then it’s best to stick to just 1 doctor that you are comfortable with. However, don’t get too comfortable or be too much in love with one particular doctor that you get tunnel vision. Open up yourselves to other opportunities and opinions, the opinions may conflict but it may open up yourself to other possibilities.
On how to choose whose protocol or dosage to follow, I rely on the doctor’s point of views, my own research as
well as my intimate knowledge of my own child. Science has not evolved enough to predict which protocol is best for a child. It is up to us to try it out and observe for improvements or negative reactions. Report the outcome back to your own doctor and move on from there.
Some parents upon getting a 2nd opinion, get confused whose advice to follow, the first doctor or the 2nd doctor’s. Firstly, if your first Doctor’s protocol is not working, then it’s time to change to a different protocol right? Secondly, if the protocol is working, you have a choice not to follow the 2nd Doctor’s advice. However, the whole purpose of 2nd opinions in my view is to challenge me to try a new direction. If I’m afraid of change, I wouldn’t have gone for a 2nd opinion right? It would be a shame to go seek a 2nd opinion and yet you refuse to try the new treatment he suggested. Might as well have saved your money and stick to the same doctor. If you are happy with your current rate of progress, then great and stick with what works. But don’t go for 2nd opinions just because your friend did it, do it because you want to achieve something else you feel has not been addressed. Like I mentioned before, don’t do a test if you are not willing to do the work required once the results are out. Subsequently, don’t seek a 2nd opinion if you do not want to deviate from your current protocol. I do it because I know there is always something new to be explored, always a new treatment or a different protocol that we haven’t tried.
I do not recommend anyone to consult with so many doctors, I never set out to ‘acquire’ that many doctors. Some doctors were better for Maya and some doctors were better for Yasmin. Not every child will require that many doctors to get to recovery, many children thrive under the care of one doctor. However, both my girls present a different set of complexities that some children may not have. Yasmin in particular was harder to treat compared to Maya.
I chat with our Malaysian biomed doctors occasionally, I also hear from many parents on their views of different doctors. I know more and more parents who are passionate in treating their children’s medical issues due to Autism, many consult with a doctor and many choose to do it solo. For those who choose not consult with a doctor, I also encourage you to seek advice not just from one source of information. I admire their courage and confidence in going on this journey without the help of a medical doctor. I learn a lot from biomed parents, their insights and knowledge of their child’s treatments are valuable.
It’s just a matter of opportunity, and you know that I am never one to let an opportunity to pass me by. If an opportunity comes by, I grab it. Time is too precious to waste and my children’s health are my priority. Never stop learning, whether it’s from books, other parents, health forums, conferences or doctors. Whether you chose to treat your child’s Autism with mainstream medicine, behavioral therapy, alternative treatments such as Biomed or homeopathy, with a Medical Doctor, a holistic naturopath or going solo on the advice of friends, however you choose, remember to keep moving forward. Avoid tunnel vision, explore all opportunities and most of all, ensure the health and safety of your child at all times.
>As part of our Autism journey, we have met many people especially in the medical and special education field. Some have been incredibly helpful, many were not. And because Autism is such a complex disorder, we often have to resort to second opinions. So, like most Autism parents here, we have had many many consults with doctors and other professionals. Preparing for a 1st consult is important, not only do we sit together to discuss our child, we are also trying to size up the person sitting across from you, whether this is the right person to guide you in the journey towards recovering your child.
Apart from medical degrees and other professional diplomas, we also base it on their bedside manner, how they treat our child and us, whether they are respectful or condescending, if they have the right attitude, whether they think they know best and disregard the parents’ opinions. Most of the time, the professional that listens to the parents are usually the best for us. A plethora of degrees and certifications doesn’t impress us as much as willingness to listen and learn, being open minded and considerate. They don’t have to be my best friend, but they have to be willing to work together with me. I don’t want someone to steamroll and override me, neither do I want someone who will blindly follow my wishes and not contribute to the occasion. Though we are not medical experts, we are the experts where our children are concerned. We know our child best and a good doctor will listen and take into account your opinions and your views.
For some reason, we have consulted with a total of 6 biomed doctors in the 2 years since we implemented an intensive biomedical treatment for our 2 girls. Not to mention countless other professionals including mainstream medical doctors, naturopaths, homeopaths, psychiatrists and psychologists, behavioral specialist and special educators.
When seeing a new Biomed doctor for the 1st consult, I would prepare the following to ensure that we get the most out of the time provided. Most consults are 1 hour though some doctors require even up to 1.5 hour to 2 hours for the first consult. Though some parents initially balk at the seemingly long time for a consult, I usually find that it’s never enough. Most parents are used to very quick doctor’s visits, ranging from 5-15 minutes. Usually, the wait in the waiting room is usually 5 times longer than the actual consult! The irony is, when observing other patients in a pediatrician’s waiting room, the parents and child gets swished in and out within 10 minutes with either vaccination shot or antibiotics. Whereas if we come in and mention that we would like to put my child on the GFCF diet or do a simple fungal infection test, we get lectured by the doctor for an entire hour!
For the first consult, you must bring your child along. It usually involves a thorough discussion of the patient and family history. His symptoms and behaviors, medical history such as vaccinations, diseases, chronic medical issues and any hospitalizations. The doctor will also ask you about the pregnancy and birth. I advise you to bring all medical and psychological tests done just in case the doctor might find it useful. During the first consult, the doctor also conducts clinical/physical examination, what they look for depends on what issues are suspected during the course of the discussion. Time is also required to obtain test samples, discussing treatment options, how to prioritize treatments, regarding supplements dosages and how to go forward.
Some parents prefer to let the doctor lead the session, satisfied to answer any question posed to them. Other parents come armed with a long list of their own questions to ask the doctor. Though it may seem that the 1 hour consult is a long time, we need to use the time wisely. I suggest you do some reading up beforehand so that we don’t waste the time with simple questions such as “What is Gluten? What is Casein? Can my child eat this or that?” Also, reconsider some of the questions you may have, think whether the foreign doctor would really know much about certain obscure traditional herbs or whether a certain local dish is suitable for your child.
Do prepare a list of questions beforehand in case you forget. Communicate to the doctor your priorities, for us it was sleep and constipation, for others it was speech, for some it was aggressive behavior. Don’t forget to bring pen and notebook or, as I do, my trusty iPad to jot down my notes. During consults when my husband is not able to attend, I can easily email the notes to him. I frequently refer back to these notes later on.
The clinic will probably provide an ice pack for chilled supplements if any. But if you are not going straight back to your hotel room afterwards, or you are facing a long drive back to your home or you are flying back, I suggest bringing an insulated bag for the chilled supplements just in case of delays.
Some parents buy more than 20 supplements (which I do not recommend) thinking that they can save on a trip and delay the next consult, but in the end, the plan usually backfires. Some parents insists on getting more supplements from the doctor, thinking more is better. For me, I prefer to buy only enough supplements that I think I can safely introduce or implement within the time frame before the next consult. On average, 6-7 supplements for the first consult is a comfortable figure for me, however this is highly subjective. Some doctors do not supply any supplements at all, some parents prefer not to buy from the doctor.
Remember, please introduce each supplement slowly, keep track with a daily log, in case of side effects or unsuitability, you can quickly identify which supplements caused it. When first starting with Biomed, go cautious. We cannot predict which supplements will backfire on a child, some kids have trouble even on vitamin C, cod liver oil or probiotics, these are all basic supplements. Starting at half or even a quarter dose, I would slowly increase the amount every 3 days. However, some parents prefer to give all at once and later should any unbearable side-effects occur, they will deal with it when and if it comes. It is up to you how you wish to introduce new supplements. However, when it comes to medications eg pharmaceutical non-natutral antifungals, antibiotics, antimicrobial or antivirals, then it’s recommended to straightaway go to the full dosage.
Please check beforehand if the doctor accepts credit card payment or only cash. The consult is generally 1 hour, but check beforehand how long is the first consult going to be. I would add an additional 20-30 minutes to collect test samples if required as well as checking the supplements given and verifying the price or dosage. I suggest bringing toys, game consoles, drinks and snacks or even portable DVD players to occupy your child during the consult as well as during the trip.
Typically, the doctor would recommend several tests. However, this is not a definitive list as each child is unique, thus tests would depend on the child’s unique issues. If cost is an issue, you can ask the doctor on staggering the tests perhaps, prioritizing the ones recommended to do first etc. Also, different doctors have different preferences on what tests are required. These are the list of the common 4 tests required; however some doctors may request for additional tests depending on the child’s needs;
Basic 4 tests-
1. IgG Food Intolerance Test- this is a bloodspot, requires a prick on the finger
2. Comprehensive Stool Analysis- stool sample.
3. Organic Acid Test- commonly referred to as OATS test, need first morning urine sample
4. Hair Analysis- hair cut from the roots, minimum 1 inch long
Additional tests depending on child and doctor’s practice-
1. Urine Prophyrin- urine sample, do not expose to light
2. Blood tests – Complete Blood Count, Kidney & liver function, IgE etc.
There are ot
her tests required, but generally these are usually done at a much later stage when you are ready to implement Tier 2 and Tier 3 protocols.
Some kids are not toilet trained or non-compliant. Some kids can’t urinate or poo poo on demand so I suggest you bring urine and stool samples with you. Please collect the samples at home, bring 2 x urine, 1 x stool. Bring 1 urine sample for OATS from first morning void, if it’s too diluted it may be rejected. In separate container 1 urine taken in the dark, anytime is fine. Cover this container in foil, do not expose to light in case you need to do urine prophyrin test. For stool test sample, you must stop antibiotics, probiotics, antifungal, digestive enzyme 1 week prior. If there’s not enough time, inform the doctor and bring the complete test kit home and send it to the lab directly from home. Make sure samples are not contaminated eg stool in urine. Please fill all containers till full just in case.
Samples must not be more than 3 days old. Place in sterile containers (get from local clinic or labs) and keep in the fridge. Transport it in insulated bag with ice pack. Otherwise, get the complete test kit from the clinic, fill it up at home and courier to the labs directly. If so, you must explain to the nurse you are sending it yourself to USA from Malaysia or your country. Otherwise they won’t give you the complete test kit which also includes the customs declaration form. The Hair Analysis requires hair to be 1 inch long minimum. Please wash hair the day before with organic shampoo, as you don’t want the hair to be contaminated from chemicals, thus skewing the results. The blood draw may be required in some cases eg the doctor will advise to do kidney and liver profile test for kids with suspected liver damage.
If your child is not already on the GFCF diet, be prepared to do so as the doctor will definitely ask you to start it asap. Most doctors also recommend to go soy-free and egg-free too, even before the test results come out. In fact, you can start it now. Discuss with your doctor how often you are expected to consult and if you need to bring your child to each consultation. Some doctors prefer to see you every month, some prefer every 2 months. Commit to seeing the doctor regularly for consults, include the trip expenses into your budget. By showing your commitment to the doctor and to his protocol, the doctor too will in turn show you his commitment, often trying harder and harder for your child. I strongly suggest getting a 2nd opinion at least once a year. However, it is too soon to decide to change to a new doctor after just 1 consult. Usually, I suggest 2-3 months to see whether his protocol is suited with your child before you decide to change doctors, unless of course you have very strong reasons to dislike him or her.
I hope this helps in preparation to seeing a Biomed doctor for the first time. The information above is mostly relevant to the current Biomed practice in Malaysia, Singapore and Indonesia. The first consult is usually the most stressful I find. Even after doing many consults, I still need time to prepare before each and every consult, wanting to make the most of my face to face time with the doctor. I have learnt from each and every biomed doctor I consulted with. I wish you and your child all the best and hope that you find the consult fruitful.
Please refer to https://spectrummum.wordpress.com/2011/02/21/more-biomed-doctors-in-malaysia/ for the latest information regarding biomedical doctors in Malaysia.
Good news for Malaysian parents and children, there are now 2 biomed doctors in Kuala Lumpur!
Dr Ng of Gleneagles Hospital, KL is a Pediatric Neurologist. She attended the Defeat Autism Now! Clinician’s Training Level 1 in February 2010 (Phone 03-42571300)
Dr Eddie Chan of Dr Chan Specialist Clinic is a Pediatrician practicing in Puchong, Selangor. He attended the Defeat Autism Now! Clinician’s Training Level 1 in April 2010 (Phone 03-80623925)
Please consult with a biomed doctor in managing your child’s biomedical treatment. Autism is Treatable, Recovery is Possible!
KL Biomed Invites You To:
A PRESENTATION BY DR RINA ADELINE, MD
A DEFEAT AUTISM NOW! DOCTOR
Time: 7:30pm – 9:30pm
Date: Tuesday, 9 February 2010
Refreshments will be served
Venue: Level 5, Matahari 2, Cititel Hotel @MidValley, Lingkaran Syed Putra, 59200 Kuala Lumpur
Registration Fee: RM100.00 per person
Family & Friends Special Offer:
Register for 2 attendees for only RM180.00
Register for 3 attendees for only RM270.00
About Dr Rina Adeline, MD
Dr Rina Adeline, MD, Dr.MS, Sp.MK is a dedicated member of the Autism Research Institute (ARI) and is trained as a Defeat Autism Now! (DAN!) Doctor. She is a Medical Doctor with a background in Family Medicine. She lectures at the Dept. of Microbiology, Faculty of Medicine, University Padjadjaran, Indonesia. She is head of Klinik Intervensi Biologis Medik, the clinic specializes in treating children with Autism Spectrum Disorder (ASD) and other related disorders. Dr Rina has treated over 1000 children with ASD. She has completed the following training with Defeat Autism Now! Completed Level I Clinician Seminar 2007, Completed Level II Clinician Seminar 2008, 2009.
What Is Biomedical?
Biomedical Intervention is an alternative treatment for Autism Spectrum Disorder and other related disorders. It seeks to treat the root causes of the disorder with vitamin supplementation and dietary changes. Find out the causes of Autism and the Interventions that can help. For more information on biomedical treatments, please visit www.autism.com
If you are a parent or a professional involved in the care of a child diagnosed with Autism, ADHD, PDD-NOS, Aspergers, Aspraxia and other related disorders, this presentation is for you.
“I would like other families to know that Autism is treatable, reversible, and in some cases curable. There is hope for any child, no matter how severely afflicted. All children, with intensive biomedical protocols, can improve and enjoy a better quality of life.” – Claudia, USA
Please RSVP by 2 February 2010. Register early, limited seats available. This event is for adults only. To register, please email us your name(s) telephone number and email address to firstname.lastname@example.org Payment details wil be sent out to you when you register.
upplements in place first, as this prepares the body for future treatments. If you don’t have a solid foundation, you may find that you are not fully optimizing the supplements and may not achieve the desired results. If you do not lay down a proper foundation, you may find that certain Tier 2 or Tier 3 treatments may have either no effect or worse, present an adverse effect instead. The first 2-3 months is crucial, the GFCF diet and 1st Tier supplements lays the ground-work for future more intensive protocols. Future protocols that use Tier 2 and 3 supplements includes anti-fungal, anti-bacterial, anti-viral, methylation products, amino acid supplementation, mitochondrial products, leaky gut protocol, detoxification, chelation and others.
Coming up to the new year, I get very introspective of the past events in this last 12 months. Instead of coming up with new year’s resolutions, I choose to remember the highlights and achievements of 2009.
or lunch yesterday, but she had sausages the previous day.
>There is now an active forum on Yahoo Group where Malaysian parents can post queries or information regarding biomedical intervention. KL Biomed is a forum for parents of children with Autism Spectrum Disorder who are doing biomedical intervention in Malaysia. Members can post questions to the groups and any member can reply. Group members are also welcome to post relevant materials and information with regards to biomedical.
My second daughter Yasmin is 2y5m, she was a happy easy-going baby, she fed well, slept through the night and pretty much a normal child. Her language and cognition is very good and she’s very affectionate. However, for the past 6 months we have noticed a gradual change in her behavior, she is often cranky, shows rigidity in behavior, uncontrollable at times and rarely smiles. Also, she started to have sleep problems, is now a very fussy and picky eater, chronic constipation and shows a lot of abdominal pain. We also noticed some stims such as tip toe walking, slight repetition in language and motion, always tapping and knocking on walls or furniture, she is always climbing on the arms of the sofa, straddling it while rocking her body and grinding her pelvis against it and we have noticed some eye stims recently.
>So far, Paul and I have seen 4 DAN doctors. All 4 are medical practitioners of varying backgrounds and specialties and they’ve all done different levels of Clinician’s Training with Defeat Autism Now!. And what we found is, every doctor have their own unique perspective, different sets of priorities, different treatment modalities and testing requirements. There is no better or worse, you choose a DAN doctor for your child based on certain criteria.