PANDAS is the acronym for Paediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus. A number of children with Autism also have a PANDAS diagnosis. For more information on PANDAS, please refer to http://www.adhd.com.au/PANDAS.htm. This is an excerpt on PANDAS from http://www.adhd.com.au- … Continue reading
Remember Min’s chronic constipation which has baffled all mainstream and biomedical treatments? I can’t recall how many biomedical supplements and pharmaceutical medications we tried, but nothing worked. There was a time when Min was on high doses of Vitamin C, … Continue reading
You are invited to KL Biomed Support Group for the first time to be held in Melaka. Please join us for support, practical advice and meet with other parents doing biomedical intervention and other alternative treatments for Autism, ADHD, Asperger’s and other related behavioural and neuro-developmental disorders. Please see below for details;
Date: Saturday 30th April 2011
Time: 7.30pm – 9.30pm
Fee: RM10.00 per person
(payment in cash, to be paid on the day of the event)
Venue: Autism Resource Center Melaka
No.12, 1st Floor
Jalan Kasturi 1/12, Taman Kasturi
Seksyen 1, Semabok
(Above StarBio Agronomy, 3 story building, facing bungalows,
Temple at the corner lot, same row as the Lion Club)
Please RSVP by Thursday 28th April with Mdm Ng Kek Kuan by SMS (019-6699285) or email (firstname.lastname@example.org) with your name(s), email, and phone number.
Thank you to Kek Kuan and Autism Resource Centre Melaka for organising this meeting and bringing the support group to Melaka and southern states families. We look forward to seeing you.
See you soon,
Marissa & Rafidah
KL Biomed (email@example.com)
If you are interested in having a KL Biomed Support Group meet in your city, please contact us.
Sign up to the KL Biomed Forum at http://health.groups.yahoo.group/klbiomed.
KL Biomed is a forum for parents of children with Autism Spectrum Disorders and other related disorders who are doing biomedical intervention and alternative treatments in Malaysia and neighbouring countries. KL Biomed provides support and practical advice for biomedical and alternative treatments on a volunteer basis. Please sign up to this forum if you are a parent involved in the care and treatment of children diagnosed with Autism Spectrum Disorder, PDD-NOS, ADHD, Aspergers, Apraxia and other related behavioural and neuro-developmental disorders.
Autism is Treatable! For more information on biomedical intervention, please visit http://www.autism.com
Any information from this group is not to be construed as medical advice. Please consult with your doctor in managing your child’s treatment.
Click here to donate and receive your CHAPP Communication Shutdown for Autism
1. ProBio Gold 20 Billion CFU multi- we initially used this, it made a great difference because my girls were really low on beneficial bacteria. But after extended use, it doesn’t seem to be as effective and cause constipation for my girls. Contains 4 types of Lacto, 1 type of Bifido and 750 million CFU strep
All of the probiotics have been helpful and effective in some manner with my girls. There is no real favorites here as rotating it seems to work best for my girls. Currently we just started using New Beginning’s Probiotic, there doesn’t seem to be any amazing improvements, but neither is there a bad reaction. Most kids are ok with strep strains in the probiotic blend, however this is child-specific. For my girls, it seems that continued use of Probio Gold and Therbiotic Complete has built-up the strep levels to the point where it affected them, usually tummy ache, constipation, irritability etc. The strep strain here is Streptococcus Thermophilus which is actually a good probiotic, but some children may not be able to tolerate prolonged dosages of it. When first starting biomed without a DAN doctor, you can choose Probio Gold as it is GFCF, has a good range of probiotic strains, it is high potency and it is easily accessible from our specialist retailers in Jakarta and Singapore or to purchase online. 20-25 Billion CFU is a good amount for ASD kids. However, if your DAN Doctor carries a range of Klaire Labs products, then I would recommend Klaire Labs Therbiotic Complete. Klaire Labs products can only be ordered by a doctor, if your DAN doctor does not carry this or if you do not have a DAN doctor, you can try to persuade a local doctor to help you order this from http://www.klairelabs.com directly. However, if you suspect that strep might be an issue, then please find alternative types.
It is recommended to rotate probiotics, by rotating I mean finishing 1 bottle, and for the next bottle to purchase a different type. Not rotate on a daily basis. I would not recommend New Beginnings Probiotic for beginners to biomed as your child may probably not be ready for anti-fungals just yet. However, once you are ready for anti-fungal treatment, then you may try this. Again, this is dependant on whether your child can tolerate S.Boulardii. For higher potency probiotics – VSL#3 is a very high potency multi-flora formulation usually to treat severe gut issues such as ulcerative colitis and Crohn’s disease. It is also beneficial for those diagnosed with Inflammatory Bowel Disease and with high oxalates. Please use this under the supervision of a medical doctor.
There are other probiotic in the market, do not limit yourself only to my list. There is no perfect probiotic that I’ve found (so far) it’s best to rotate and observe which ones is more suitable for your child. Probiotics is high on my list of essential supplements for both my girls.
1. Which DAN doctor should I see?
up ordering the wrong tests even though it’s from the correct labs and they do not know what to do with the results afterwards. You may end up wasting A LOT of money on doctors who are not experienced with it. They MAY be able to get you the correct tests, but do they know how to interpret it and remedy the problems?
ntly interested in weddings, she loves looking at my wedding album as well as wedding pictures from my celebrity magazines. She truly enjoyed going to a wedding recently, even though the noise and crowds bothered her, she was still able to overcome the difficulties and enjoy it. She has insisted on choosing pretty white dresses recently and loved the little veil I bought her. Looking at her wearing her white dress and little veil proudly, I hope to one day attend her wedding. I look forward to seeing her grow up into the lovely sweet girl that she is, for one day I hope she too will lead a full life, fall in love, get married and have children of her own. Whatever her future may be, I am proud of her. Every day, Maya gives me inspiration and strength to go on. She is indeed my angel.
>I came back from another smuggling run to Singapore, instead of poop, this time it’s wee. I sent in Yasmin’s urine sample for the Organic Acid Test, hopefully this will shed more light into her ever increasing sensory disorder.
>All of you who know me is well aware that I have many things to say and I never hesitate to say it. There are never any short phone conversations, my email responses are very long and as my dear husband can testify, I can talk till the cows come home. Guess what? There is so much more that I don’t dare put into words, for fear of breaking down and not able to get up again. So much more in my heart that I keep to myself, for fear of scaring away the few friends left remaining. So much more words in my head, being suppressed because there’s just no time left to say it because there’s a hundred and one things left on my to do list. This article written by a fellow Autism mum says it all for me. Please read http://www.ageofautism.com/2009/07/autism-perception-a-bump-in-the-road.html#more
Like all Autism parents, I’ve built up a collection of books and reading materials. And in our spare time, we watch biomedical videos downloaded from the Web or in DVD. Many of my reading material and research center around biomedical treatments, however I have read several biographies as well as therapy-based books. Here’s a list of books that has had the biggest impact on me and my thoughts on them;
Most children with Autism are non-verbal. They cannot talk, they cannot pronounce proper words, some make unintelligible sounds. Some children develop speech and language normally and then would eventually regress and lose their speech functions. For some, they never acquired any language at all. Language impairment is one of the main symptoms of Autism.